Isn't this cool!!
To all my family friends, tomorrow one of my friends (a Sanfilippo dad from Delaware) is leaving for Africa to climb Mt Kilimanjaro in order to raise funds to help find a cure for his 2 kids and all the others. He is taking this flag with h
im in honor of our kids. Rhys's name is below the middle of the letter "M" near the bottom!. Every MPS child or adult that has requested their name go to the top of the mountain is on there. Please follow his journey with us, pray he does well on his 10 day adventure. You can follow this at https://www.facebook.com/events/363769350337170/ and also http://www.teamsanfilippo.org/ There are several ways to donate, please take the time to check it and out and donate something, even only $10, as every dollar adds up. It can be as easy as Texting CLIMB to 72727. Thanks so much!! ♥
As some of you know, my 11 yr old son Rhys has MPS1 Hurlers Syndrome. We are honored and feel privildged to have his name amongst all the other MPS children and adults on this wonderful flag!