To all my family friends, tomorrow one of my friends (a Sanfilippo dad from Delaware) is leaving for Africa to climb Mt Kilimanjaro in order to raise funds to help find a cure for his 2 kids and all the others. He is taking this flag with h
im in honor of our kids. Rhys's name is below the middle of the letter "M" near the bottom!. Every MPS child or adult that has requested their name go to the top of the mountain is on there. Please follow his journey with us, pray he does well on his 10 day adventure. You can follow this at https://www.facebook.com/events/363769350337170/ and also http://www.teamsanfilippo.org/ There are several ways to donate, please take the time to check it and out and donate something, even only $10, as every dollar adds up. It can be as easy as Texting CLIMB to 72727. Thanks so much!! ♥
As some of you know, my 11 yr old son Rhys has MPS1 Hurlers Syndrome. We are honored and feel privildged to have his name amongst all the other MPS children and adults on this wonderful flag!
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What an amazing adventure!Ihope he has a safe journey and safe climb.--Jan
ReplyDeleteThank you so much Jan! We hope he has a safe climb too and it's for such a wonderful cause! Have a wonderful day tomorrow :)
ReplyDeletehugs, Trish
Oh my goodness, how humbling to have your childs name on a flag on a mountain, and not just an mountain. I pray for safe travels and a safe climb.
ReplyDeleteThank you Betty! I know that you have worked with an MPS child before so you understand how wonderful and humbling this is to a family affected by MPS :)
ReplyDeleteTrish, are you okay? Missing you in blogland
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