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My son Rhys, my hero, my inspiration! He has MPS I, Hurlers Syndrome
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Good morning friends! Today is International Rare Disease Day, if you have something purple, wear it to show your support! Purple has always been my favorite color, so it's not a problem for me to wear something in honor of my son Rhys who suffers from a rare disease:)
I don't know where February has gone to, it whipped by so quickly! Today we are expecting a snow and freezing rain storm. It was to hit earlier this morning but now it's changed to around lunch time. The kids went to school so I am hoping the weather is not too bad for their ride home cause I can't go and get them :P Since it is so gloomy around here I am having a hard time getting around to get stuff done. My wonderful husband brought in the wood for me before he went into work saving me from slipping on the ice! Yesterday I moved all the furniture around in our bedroom, that was not fun when you have a small room and lots of furniture :( I need to straighten up my closet so I can shut the doors and tidy up my crafting area (which I want to move into a different room, lol), than our room is done. I also went to the goodwill store yesterday and found some more wooden bowls...can never have enough of them! I think I just might settle down and paint them and stain them, spring colors I am planning...something to brighten the house up. First I will sip on my coffee infused with Irish Cream, yum! to give me a boost :D
Have a wonderful day my friends,
Blessings, Trish
Thanks for sharing....Going to put on a purple shirt now .... I have a Granddaughter with Williams syndrome... a genetic disorder also...Blessings to you and your family....
ReplyDeleteYou are very welcome Lindeelou!! I have never heard of Williams syndrome before but I am off to check it out :)
DeleteBlessings to you and your family too,
hugs, Trish